My Health, My Say: the experiences of people with a learning disability using local health and social care services

We worked with Sheffield Mencap and Gateway to explore the experiences of people with a Learning Disability when they access health and social care services.

With the help of Sheffield Mencap & Gateway, we heard from 143 people with a Learning Disability who lived in Sheffield. We compared the responses they provided with a similar survey run by Healthwatch in 2014, which surveyed the general population.

Key findings:

  • The attitude of staff is key to an individual’s experience of using a service.
  • Respondents told us that their experiences of services could be improved if more health and social care professionals had a better understanding of the needs of people with a learning disability.
  • Communicating and sharing information effectively is a recurring theme. Written materials need to be both appropriate and accessible.
  • Regular two-way communication was important to respondents, including regular social care reviews.
  • Many people with learning disabilities also have physical disabilities so appropriate access to services is important. A calming physical environment is ideal.
  • Specific barriers and challenges to accessing services were highlighted as having a negative impact on those with a learning disability. These included difficulties with access to a social worker, the transition from children and young people to adult services, and variability of day care services.

Downloads

If you need these documents in a different format, please email info@healthwatchsheffield.co.uk or call 0114 253 6688.

You can read the report, and an Easy Read report, below:

My Health, My Say report

Easy Read report

We received responses from local services to the recommendations we made in this report. You can read these below:

Sheffield City Council

Sheffield Teaching Hospitals

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